I have been diagnosed with PCS (via pelvic venogram). I am currently fighting with my insurance to be seen by an interventional radiologist that is experienced in PCS-related embolization.
While I am miserable and desire treatment, I am in my early twenties and nulliparous. Reviewing the clinical literature, it is difficult to find clear consensus on the impact (potentially bilateral) ovarian vein embolization can have on fertility. I would appreciate clarification in this area! Thanks
I have been seen by a gynecologist, and had a colposcopy done, and had an ultrasound scan. All of my symptoms fit pelvic congestion syndrome, and the doctor said the scan does show this. The gynecologist has recommended an IUS or birth control pill. Is this just a waste of time? Everything I have researched has not recommended this treatment.
I have had two unexplained miscarriages and not been able to conceive over the past two years since last miscarriage. Could PCS be a reason for these difficulties, given no other cause has been found? If so, could embolization improve my ability to conceive?
My treating IR also found left renal vein compression between SMA and aorta and believes this to be the cause of my PCS and enlarged retroperitoneal veins. I suffer chronic pelvic, left flank and lower back pain.
I have PCS and apart from occasional pain in the pelvic area, I feel daily periodical pain only on the right side of my abdomen (from pelvis up, but mostly near belly button and all the way to the ribs). The pain has been daily for years but doctors can't find the cause. Can PCS cause this? So far doctors have been useless, and I am very worried. It's a 3 to 4 on the pain scale, but it's a nagging pain that lasts for a few seconds to an hour and comes and goes a few times a day.
Last year I gave birth in week 22 + 5 because of heavy bleeding. Nobody could explain the bleeding. I am now pregnant in week 12 and have had 4 very heavy bleeds. Doctors have now said I have PCS but have never seen it before. I will be passed on to a specialist. I am writing from Denmark; I cannot find any information in Danish. I'm desperate and very scared. Cannot loose another baby. What can I do? I am on bed rest. Doctor says blood vessels are enourmous. I have discomfort but no pain.
Vein malformation is congenital and has been treated with embolization/sclerotherapy at NYU/St Luke 11 times. At this point, collateral circulation grows within a year of vein treatment. I read of the Velcro-assisted garment for thigh only. I had many good days of walking, but then my vulva became swollen, similar to thrombosis. Now, it is being suggested by a CML that I get lymphatic massage to break through the vulvar area of congestion. I never had lymph malformation. I am so confused/sad.
My sister was recently diagnosed with pelvic congestion syndrome after two healthy pregnancies. Are there any risks associated with future pregnancies? Also, is there any treatment, including embolization, that still allow you to get pregnant again?
I had an ovarian vein embolization done in July of 2015. Unfortunately, the problem has returned and I again have hip/leg pain. What are the risks of having sclerotherapy performed on my internal iliac veins? Also, how do I find a doctor that is around my area and proficient in this? The ones I have talked to for a 2nd consult don't do very many of them and I am very nervous of saying yes in light of this. Thank you for any help.
I have hot flashes/night sweats that make me feel as though I've bathed. I'm also very moody and want to cry over nothing at times and then get really agitated. Since having an embolization for PCS, my periods only last a day or 2 now and are extremely heavy. Then, I'll stop and 2-3 days later, I'll have black discharge. I still get horny but my vaginal area stays dry a lot. I've had to use lubricants to help with sex. Is this premenopause? Is it normal after an embolization?
Last year I had surgery for Nutcracker Syndrome, and later had my left ovarian vein coiled due to symptoms of pelvic congestion. Now, I am experiencing identical pain/discomfort, but my new gynecologist says I am too old to have pelvic congestion syndrome. I am on HRT with hormone pellets containing testosterone and estradiol. I've had 2 pregnancies, and my uterus and ovaries have been removed. Do you concur?